That's exactly the sort of thing I'm coping with right now. The best currently available treatments can only mask and slow the progression of symptoms; the only really effective therapy at the moment is to try to build redundancy into the system at a rate approaching the loss of "primary storage". That includes nutrition, aerobic exercise (which, admittedly, looks a little bit silly when performed by someone who has difficulty controlling his limbs and maintaining posture) and keeping the ol' mind as active as it can be. That's hard, too -- it is very easy to let frustration overcome you and decide to lie down and die. But as long as there's a life worth living after the grunt work, it's something I'll keep on doing.

That said, I'm not holding on to life for its own sake. At some point I will either become incapable of any real physical activity OR too stupid to live. I've gotten a little taste of both when I've needed to get a baseline reassessment of my condition (which is not a typical presentation of anything, but seems to be more like Parkinson's than anything else on the menu). It's a bit of a race, really. I'm hoping that stupid wins, and that when it happens I do something so spectacularly stupid on the way out that it will make the news the world over (and perhaps win me a Darwin award).