Just because the medical establishment doesn't have answers doesn't mean that someone outside of the establishment does. It sucks, but sometimes no one has an answer, and it's better to accept that than to listen to whoever claims to know.
Why is giving up better? What’s the harm in being wrong about fixing your own issues?
All I can see is wasted time and effort, but as a person with a lifelong (supposedly) incurable illness, it’s time well spent. I’d rather struggle and fail than accept my fate.
To clarify, accepting that no answers might be available frees up our energy to focus on what we can do rather than trying out every dubious or fraudulent claim that could do us real harm.
This is coming from someone facing a life-threatening illness. I hear lots of shit advice all the time. I've chosen to separate myself from support groups that circulate dangerous ideas, and I think I'm better off.
I do hope you get better and advising against ignorant support groups spreading misinformation is good, but it’s also stupid as all hell to suggest to others that they give up. Accepting that there are no answers is the same as lying down to die. There is always an answer and even if you or I won’t find it, the group pursuit for truth is a positive thing
The alternative isn't giving up. It's doing what we can with what we actually know based on science-based medicine. That might include seeking a second, third, etc. credible opinion.
Unfortunately, there isn't always an answer. Countless people suffer from conditions that no one understands.
Best case it’s wasted time, effort and money which all can have an emotional/stress toll as things don’t work. Worst case is you try something that makes things even worse. Both can be pretty bad.
Queen sized static mat: Max $200 and 60 minutes for all review-reading. ordering, unboxing, installation. Possible outcome: healing, better sleep, reduced pain. Reward/risk ratio is great here.
Why would the establishment be the only people worth listening to?
Just because they don't have an answer doesn't mean no one has an answer.
We've received many helpful tips on things to try from others suffering with the same symptoms. We have brains, and an ability to use scientific method to investigate for ourselves what works for us. Someone may say, "try this diet change - it worked for me". You don't need to be a doctor to try that.
This grounding thing doesn't seem hard to try out, and there's no obvious hazard with trying it.
There are lots of dangerous ideas floating around out there (remember drinking bleach to cure COVID?), and lots of predators willing to separate the desperate from their money. Of course the medical establishment isn't the only source of answers, but looking for them outside requires even more caution than usual.
And again, maybe no one has answers. Answering why a condition exists might not even lead to a cure. In the end, it might be better to spend more energy managing symptoms than seeking answers. That sounds pessimistic but it's also pragmatic.
